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Reflections 2018 w24

Insanity is defined as doing the same thing over and over again and expecting a different result.

Am I insane?

I trust in the doctors and psychological teams, over and over – being told the same thing over and over…There is no magic pill, it’s the therapy that will be best treatment, and it will be hard.

I accepted that, and it made sense. After-all it took a lifetime to break my mind, logic dictates it will take the rest of it to become better. But how is one supposed to carry on trusting when therapies are blocked/denied/not accessible, even when it has been part of a diagnosis and treatment plan by a doctor? Because one is on medication it is classed as being treated – opposite of what one was told originally – that the therapies would be the treatment long term not the medication, and I quote the doctor “the medication is just a band aid”.

I wish that there was a treatment plan of an alternative direction, more natural than chemical manipulation, recognised as treatment. One would give it a try, because the medications one is on now are just coincidental to the symptoms of known side effects – which are making me less well.

And my trust is beginning to fade.

Today, as I once again caused a lot of pain to my body chasing my son around the play centre, a little girl stopped me and asked why I was wearing headphones – the big over ear ones – I like that in children, the curiosity to question and the courage to ask them, so I told her. I told her it was to block out a lot of the noises around me in busy places, because if I have a lot of noises to listen too, my head hurts. Kinda the truth, I did not want to tell her what my anxiety manifests and give her nightmares. She listened, digested the answer, and decided it would be fun if I chased her and her friend around the play area. I called my son over to see if he was interested in chasing them, and then being chased, but he was having non of it, today was daddy day only.

This in part I think was because his best friends Dad died this week, and he wanted to have the comfort of having his dad play with him. I think that this is the second father, defiantly the second parent, that has died in the last 18 months, of one of his school friends. This year his sleepover happens to be on fathers day eve, one thinks tomorrow will be an extra cuddly day. I have got the cuddle films at the ready.

I don’t think it unreasonable to ask for a treatment to get better, if only to ease any worries he may have – toward a dad he has never seen well.

 

www.awanderthroughthemind.co.uk/reflections-2018

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Dear Doctor…#Poem#Poetry#Prose

Dear Doctor

What pain do you seek of me,
in screams that can be heard?
How can I make it crystal clear,
with each, and every word?

My medication, poison pills,
upon prescription slip.
Tis all that you will give to me,
T’ help with bumpy trip.

Sodden I do slump in place
in tears that I have cried.
What will the treatment cost me now,
if not the suicide?

My veins should I give to you?
For payment in my blood.
Or would you just inject a drug,
I rather think you would.

You say that I am just unwell,
my mind it needs to heal.
Then medicate me to the hilt,
til nowt there is to feel.

Emotions that’re now suppressed,
always will break free.
Fix the problem at the source,
supply the therapy.

But this thing to me denied,
the reasons are unknown.
And then you go and wonder why,
I feel I stand – alone.

 

A § M
20/02/2018

 

www.awanderthroughthemind.co.uk/poetry

Reflections 2018 w07

Therapy, my very first Psychiatrist said, will be the thing that gets you better, the medication is only a bandaid, a short term help.

I did get some therapy after that, but only for my free gift of twitch and speech problem…erm…acceptance – once these were accepted I could no longer be treated by the physical health psychological team. However a recommendation for further treatment was sent to the mental health team at the time.

This was rejected due to my involvement in some group work, conflict of interest, and when finished I chased up the recommendation. This got an interview, and another rejection – due to oneself having many coping mechanisms, most of which were highlighted as negative in the group therapy, but in this setting they were seen as positive. The biggest coping mechanism that I have is avoidance, if it is unpleasant I somehow have worked out methods of avoidance for it, or for at least part of it/its stimulations.

Now here is where one has to state that I want to get better become a better person than before, major changes to how my mind works have altered ones perspective of oneself, and I wish not to ‘return’ to the person that ‘broke’. I do however wish to get rid of the dyslexic like aspect towards text (Dr quote “it will go away in time”) and the severe anxiety around people, outside, starting something new, life etc.

One has found a use for, most of, the illusions (Dr quote “it will go away in time”) through my art and writing, so one no longer finds them as disturbing. The twitching (Dr quote “it will go away in time”), that came from something but it’s hard to say what – actual Neurologists take on the twitching and the change in speech, is quite literally an anxiety/ stress indicator, the worse the anxiety/stress the worse the twitch.

If you see my right arm and hand do an invisible ranting hand puppet impression, I’m not having a good time – if I am stamping as well – stand clear of the exit.

My change in speech (Dr quote “it will go away in time”) was helped with speech therapy, who had a different view on whether it would change. Basically if it is anxiety caused, this is rare in adults over 40, common in children though, then receiving therapy to reduce/get rid of the anxiety, could, get rid of the stammer/stutter.

The magic pill it seems is therapy and hard work.

By now any free therapy was seen as a potential for healing, Anger Management (twice, with different companies), person centred therapy, this took me five weeks and a lot of psychological text books and notes for the next meeting to understand how it worked. With only three weeks to go I finally understood it was not an anger management therapy session as I was originally led to believe when one was referred. Which made me p’d off.

Each thought my diagnosis was incorrect and could not understand why therapy had been withheld.

A change of Psychiatric hospitals and another suggestion of therapy, another test and another rejection. Am I any better? NO!

Then comes the constant flow of trainee Psychologists/Psychiatrists – “you would benefit from therapy, I will suggest that that be looked into.” – NEXT – “you would benefit from therapy, I will suggest that that be looked into.” – NEXT…

There has been no problem describing drugs though. One hopes you never come across a doctor who gives you only pain killers for a broken leg, for years.

But one wishes to end with some good news…

In a roundabout way I have been referred to the original place that I received the original psychological help, this time however one is not going to just roll over and accept the diagnosis (of no diagnosis), it makes no sense to me either – but they have a drug for it.

I wanted to end with some good news.

But for some reason though I had a phone call from the G.P saying the Hospital referral has to be discussed with my G.P first??? And they are the ones that referred me to the Hospital department. WTF? It may take me a week just to get an appointment with the G.P. I’m already dragging a mountain and a black dog around – I don’t need this anchor of doubt over the therapy again!

Sod em…Some good news.

I saw the International Space Station pass overhead for the first time last week. And when I get the chance to see it with my son on one of his visits I will.

 

www.awanderthroughthemind.co.uk/reflections-2018

Reflections…Week Forty Eight

canstockphoto8630797Have I watched that many ‘girly’ flicks and programs that I am, by doing this, copying the very format that the writers have used?

From Carrie (Sex in the City) to Erica (Being Erica) and Marin (Men in Trees) I too seem to be ending an episode (my week) with a monologue. True my very existence may not be the most interesting at this moment of time, but I do feel that the very people that I am meeting on my recovery are.

Sometimes I do not even know if the very people I meet are actually here (supermarket-meeting-poetry/poem), or my mind has created a person to teach me something. But for that moment in time IT IS important and interesting.

As an artist one spends time observing, even here my mind now sees things a little differently now, and then in whatever style chosen, places either a ‘true representation of the scene, OR the heart of it, the emotion, the feeling, the movement, the sound or the serenity. All with the flow of the paint and the movement of the brush, to no longer see what is being created but to just let it flow out onto the canvas.

As a wordsmith in training, one spends time observing, reflecting and creating an artwork of language. To simply place a series of words down for a poem is not simple at all, each word is lovingly placed, replaced or simply repositioned. All I write is done this way. A beat or rhythm of a journey taken with the words lays beyond the shape and form of the very words themselves. A wrongly placed pause can disrupt or even alter the flow, sometimes to the detriment of the wording used, dulling its edge.

A reflective diary is used in some therapies, a way to explore our existence, look for the ‘faults’ and find a better way in dealing with the situation, how then did this therapy get entwined into our TV? Was it intentional to pass on the lesson of reflection to improve our life, or was it just placed there by accident? A concept that outgrew the original pitch once the ratings came in? Or was it just a writer being honest about not having the perfect life and trying to work things out?

And thus the question leads back to me. Am I just doing what I am told, or am I part of a solution by doing the reflective monologue of my life?

And will you someday, in some form, be the ‘interest’, the focus, of my artwork?

 

www.awanderthroughthemind.co.uk/reflections-2017

Reflections…Week Forty Four

canstockphoto8630797Some weeks you just want a focal point, something routine so you know where your at, this was one of those weeks.

A lot of running around was done by members of the family, emergency trips to and from hospital followed by an emergency op, my little cousin goes through a hell of a lot, we know this because my sister does, and that’s just looking after her.

This threw out the week due to having to have ‘Monster’, her brother, getting up early was extra, plus the journey(s) to drop him off/get him, shopping was later , so on and so forth. What has thrown it all whack though is the uncertainty of one of my groups, it’s lost its funding, or at least a big chunk of it. This is on top of a drastic restructuring of that service due to a person leaving.

Drastic would be overstating it for some as the time table has remained unaltered,  but the staffing change has shifted dramatically. The person who has taken over the ‘group’ tries hard, she really gives it her all, however she has not the same level of counselling skills as the previous person, skills that we became dependant upon as part of out non-clinical clinical help. If that didn’t make sense, neither does it to us, and we have had to find the clinical therapy help in a format that came from our non-clinical support. Even if she was to be trained in counselling, the time it would take for her to complete the course would render the skills mute for us now.

And those skills are what are needed in times of great change like these.

Part of me hopes that the Psychiatrist does not find out about the funding before the next meeting in December, otherwise I fear he will try to place me back onto antidepressants, and I do not want that.

Without a focal point in the week though, I’m muddled.

 

Puddle… #poetry #poem

Puddle

If your mind’s containerises,
each memory then is just a drop.
And when the droplets do combine,
the puddle it grows, it need not stop.

There is no shape to work towards,
no master drop design.
No matter are the bumps bellow,
twill surface not define.

A child can in puddle splash,
and send in all directions.
But most will flow to puddle back,
be still, and show reflections.

Tears will the puddle grow,
whether sadness or of joy.
The saltiness diluted out,
matter not from girl or boy.

From puddle to pool and then to lake,
great depth the surface hide.
And with the wind a movement make,
to ebb and flow the tide.

With water you can take a drink,
or even let it flow.
You cannot cage it with your bars,
around it puddle will grow.

The mind 2 of 2
A § M
22/8/2017

Reflections…Week Thirty Four

canstockphoto8630797Easy one this week…Voice is loosing its funding.

Never heard of it? Until a month ago never had I. Now I have a chance to let people know what it is and what they do.

First the official aims of the group:-

  • To improve mental health services
  • To bring together people who use mental health services, in order to increase their influence on services and to strengthen their voice
  • To inform people of their rights, about local services and any planned changes
  • To empower and protect the rights, needs and interests of people who use mental health services in North Staffordshire
  • To influence the way those services are planned and delivered
  • To reduce stigma towards people who have mental health problems

Now my personal, albeit short, experience.

I have an issue with my mental health, and I have an issue with my treatment. I am not saying the service is bad, however I have an issue with the treatment.

At the diagnosis some six+ years ago, I was told that drugs were only a band aid, the therapies were the solution to healing. That person passed me over to another and my relationship with the medication, unknown to me, began. I say unknown because at the start I was given the idea that a couple of years should do it with treatment.

The treatment has been withheld due to my ability at finding coping mechanisms, mostly with the price tag of avoidance, not a healthy habit to have. But this deemed me as coping and left to a drug only treatment. The drugs come with known side effects that have been ignored in the past, and for a long time the effectiveness of the medication has been questioned by me and a couple of therapists, Psychology consultants don’t seem to like having their diagnosis’s questioned by these people though. And so the cycle has continued.

What would I know?

Firstly the magic mood change, allegedly by the drug regime, came at my six week stay at the mental hospital. Here though was huge change to my life…I was effectively kicked out of my home by my ex, a blessing, though at the time it did not seem that way. So this meant my home-life completely changed, it was never taken into account that it could be positive – no longer being in that relationship.

Secondly, this is where my adaptations to my routine came into play, well even the routines became my coping mechanism. I had to come up with something, out of know-where came a twitch and a bloody speech problem (officially known as “from Unknown Source”), that could not be fixed. It got better with the help from Speech Therapy, also started whilst in the hospital, but never gone. So routines were developed and rituals were born.

Thirdly, this is the bit that bugs me the most…I am classed, by some, as being a higher functioning personality. Basically I can read geeky stuff and post graduate study notes and follow along for quite a bit on some subjects. Ask me to do the sports pages on a paper and I’m lost, basic instructions can have me flummoxed if the terminology is not in a format I understand. This has lead to problems of communication. I felt what I was saying at the beginning was being ignored, due to my limited knowledge of the terminology being used. So I did what I do, I learnt the correct terms, I did the research.

Hallucinations became Illusions, “they will go away in time”, High anxiety in crowds, to the point of passing out, “will go away in time”, side effects of the medication, “will go away in time”. On and on it went, my using the correct terminology actually made it worse, go figure!

This is where Voice comes in, they are a mediator, a ref of sorts. They can use the correct terminology and get heard, even if the client does not know the words. They can deal with the doctors if the patient questioned the treatment, and work for an alternative approach.

One phone call and my next appointment was a thorough review. Not only is my therapy treatment being looked at and I am being referred to an Eating Therapist for a possible eating disorder (sorry sis for finding out this way) and one of my medications was not increased due to it being an appetite stimulant and known for weight gain, also I was not put back onto a medication, but, and this is a credit to the Doc I saw, he is chasing my GP about getting physiotherapy for my back. Not put forward by the spinal team or the Neurologist, even when they found out I have three disc bulges and that these are/are not the cause of my nerve pain in my legs and feet, or the depression is to blame, dependant upon which consultant you speak to, but my Mental Health doctor. Something is not right there.

One phone call.

I had a Voice. And so do all who use the service and those like it around the country. But they are loosing funds, because they don’t meet targets or deal directly in the treatment of patients.

No they don’t. They should be seen as possibly saving the system money in the long run, even just reducing medications would be a big saving. Normal Hospital treatment has PALS, this is a mental health version. 

I want to be better, not “coping”, I want to be independent of drugs, not dependant on, I want the work that the therapies will require, to fix what can be fixed, replace what cannot. Most of all I don’t want to have to rely on the likes of wikipedia and youtube to do it or the thousands of self help books that all have the best way to do it.

Anyone, from depression to Alzheimer’s, anxiety to dementia should have a voice. Including the families of those affected who see the effects of treatment on loved ones.

If you wish to find out more, or make a donation , please follow this link: http://nsvoice.org.uk

I am not sponsored by or work for Voice, nor do I represent the company in any way. I am a service user and this is my opinion.

 

www.awanderthroughthemind.co.uk/reflections-2017