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Reflections…Week Twenty Three

When you know you have caught a bug.

Not the insect kind, though I do with my son, nor the germ kind, this be the new ‘habit’ kind.

One started the blogging just to write something, Miss Ross’s words have echoed around my mind since High School like a squeaky fan in an air conditioning duct. She said I could, and should write a story as she enjoyed reading mine, she also said I failed to write a beginning and an end, it felt like I had just jumped to the action in the middle and I should put them in. Unfortunately copies have not been kept.

To start, writing was a chore, it was hard work, especially when people started to follow me and like the blogs, this added pressure to write well. Writing well is not something I feel I can do naturally, the structure and form of writing is lost on me, and don’t even ask what a simile, metaphor, adjective or pronoun is. These were never explained to me in a learning style I could follow.

I know oxymoron; somehow one feels like this is saying something about oneself.

Now one looks forward to writing, it’s even become a pleasure. My little note book is carried around and ideas are written down in it, often. But now I know one has caught the writing bug. More specifically the Poetry writing bug.

It is still done within the confines of therapy, but I have just finished my third in as many weeks, tweaking will follow of course. Two of the subjects were set as ‘themes’, and in the little notebook are ideas for more. One knows that the quality will not be of the highest standard, but I don’t care, I want to write another, and that is how one knows one has caught a bug.

As bugs go this has the chance of metamorphosing into something much different than what it is now.

www.awanderthroughthemind.co.uk/reflections-2017

Reflections…Week Twenty two

canstockphoto8630797A week of uncertainty, a week of determination.

For nearly three weeks part of my medication has been unavailable, completely ending my dose just shy of a fortnight ago. No weening off, just a sudden stop, ended, and as it is the only one in its class, no alternative.

Luckily, I have had no side effects, BUT, and it is a big but – after multiple failures to obtain the medication it took a week , due to one thing and another, to find out if I was at risk of harm from the sudden stop and what my options were.

Not the risk of harm as in suicidal thoughts, depression, anxiety, the usual bag of side effects. No the question was more of physical, I have been on this medication for years and my body chemistry would have adapted, to a degree, at receiving it daily.

The staff at the groups I use have been kept aware of what has been happening and helping where they can, so I have good, knowledgeable, organisations as backup should things start going wrong. Family are also available, so two safety nets as it were. But it is the group staff that have had the most concern, they have seen people ‘go off’ their meds, and the results are not usually pretty.

If I was at the stage that my belief in the medication is the source of my healing, I would have been worried, but since being on the medications my health as a whole has decreased, co-incidental?

When you go onto medication and you show side effects that the doctors doctors don’t see as problematic, weight gain, brain fog, heck, even my illusions were classed as a side effect by one doc, the usual “it’ll go away in time” becomes the standard reply. This is, I believe, because you cannot test for side effects, so how do you prove/disprove they exist in a patient? My sudden development of a twitch and stammer could not be found in a book, not in patients over the age of 16ish, so that too got the “it’ll go away eventually” line.

Add in the factor of ones improvement due to therapies, that also has no test for it, you have two variables of ones health that do not fit into the equation. The drugs get all the praise and none of the blame, does this really help the patient?

There are reports by some doctors in America, including at least one Psychiatrist, that say the drugs are not the answer, and a homeopathic approach is better for the patient long term. Now I don’t know if that is true or not, since there is no profitability by the drug companies, there have been limited studies on it, but I don’t know why it isn’t available alongside as part of the treatment, possible side effects – better health, better diet, shorter amount of time on the medication, therefore less exposure to the common side effects of suicide, suicidal thoughts, depression, anxiety…

One goes to a weekly group that, for want of a better term, does life learning. Which is to say ones life choices, usually influenced at an early age, are questioned and alternative thought patterns are offered. The idea is simple, identify negative traits, identify why they are there, explore alternatives, implement small changes, find oneself and become oneself. Sometimes we are shaped, including our reactions, from outside sources, to a point we become less us and more what is expected to ‘be’.

Yes I am aware I speak as one and as multiple, this can also be a side effect of the shaping, segments of ones personality can get segregated.

Side note  pomegranate/pear/raspberry juice with spirulina and green superblend powders…yuck…eugh…nasty!

I believe I have been lucky in experiencing no side effects (to present), and I would not recommend stopping medication to anyone, but I would recommend you going to as many free therapies/groups/courses as you possibly can that are available in your area. The amount of courses/groups I have gone to is the reason I don’t fear coming off the medication, even as a trail, how else can it be proven if it was the  drug or whether it was changes made during my stay at the mental hospital responsible for the improvement of my mental state and whether the drug has been ‘working’ these past years?

In the West Midlands there are groups like Brighter futures, Echo, Mind, Healthy Minds and Changes, these are the ones I know about but not all of them, they are free and recognised Mental Health groups.

If a series of events and responses in the past are responsible for present, then is it not a good thing to learn to change the responses in order for the future be different than the present?

www.awanderthroughthemind.co.uk/reflections-2017

 

Reflections…Week Eighteen

canstockphoto8630797I once had to dump my motorbike and jump into the side of an Artic Lorry Cab, leaving a dent in the cab door and wrapping my tobacco tin around my thigh where it hit the cab wheel. I was bruised and I ached the next day but I went back to my very manual job. Just another day, just another bruise. It was a walk away, though for the motorbike it was the end, that went under the wheel – and then under it a second time as he reversed back over it to see what he had hit.

I’m older now, not so able to just shake off the knocks, but I manage. What I find difficult is the days I wake up with every muscle aching for no reason, my head swimming like it is the morning after the night before, including the hissss – sunlight – shut the curtains and block it out, and the brain fog.  Yesterday was bad, I hardly moved out of my darkened room, my head in limbo from one thought to the next, even prompting by spot didn’t get me out of the house.  It took most of today to work up the momentum to do it, sometimes going outside is like walking against a strong wind, but only you feel it, and until you do, you don’t really understand how difficult it is.

Spot has been a godsend in my recovery, she knows when I am dipping, she plays the fool more elaborately to cheer me up, in her mind it works because I take steps to divert it when I can, she is my early warning system when I don’t wake with it in place. She will prompt me for going out, to the point of anoyance, and a simple day out for a walk with her is something to aim for .

And she gives good cuddles without asking.

But even with Spot in place the constant pain is starting to wear me down, I have support in place, but I just want to know what is happening and why my feet feel like someone is trying to rip them apart. These are the worst parts and at the same time these are the ‘worst’ parts.

They hurt the most and they hinder the most, I cannot remember a time without some sort of pain in them now. I hate being given ‘advice’, the meaning well’ness is there, but if it aggravates whatever it is, I suffer the next day maybe two. An exercise for one complaint can be torture for another. That is why I am waiting for an answer from the doctors before I start anything new, heck even they have offered no exercises to do that I am not already doing.

Its been two and a half years now and though I have a few “it’s not” statements the path has run its course and i am being signed off, so I have to start right back at the beginning because I was sent the wrong way. Not that I was expecting much from Neuro, they admitted that my stammer/stutter and twitch, which appeared out of the blue five years ago, was neurological but they did not know why, off I was sent to ‘receive help’ to accept this new feature, job done. But never have I been treated like I was dog  dirt on a shoe for being there, on another doctors referral, and wasting his time before.

All I want is an answer to the question….”Whats up doc?”

www.awanderthroughthemind.co.uk/reflections-2017